[Medical] Is this unusual?

Rashmon · May 29, 2008

Supermac34 said:

It is a type of cutaneous T-cell lymphoma. My father had a much more virulent and rare form that was diagnosed in 1988. His particular kind was treated with a simple surgery and local radiation. He has been cancer free since then.

I believe the kind your Mother has is almost still treated like a rash, despite being a cancer, and she will have an ongoing treatment plan for her entire life.

The goal is to maximize periods of remission. With good Doctors and a good plan, she should be able to have a full, long lasting life. The good news is that the initial treatment of steroids was already started even when they thought it was just a rash.

My advice for anyone dealing with cancer: There is almost alwasys a Doctor or group of Doctors that specialize on particular cancers. Do your research and get a referral to those Doctors. A Doctor that specializes in cutaneous T-Cell lymphomas, or has a lot of experience in them, will know the new treatments, what works out of the old ones, and how to better identify and track the disease. Your general practitioner does NOT always know who the best Doctor is for a particular disease, they simply don't have time to know everybody that specialized in everything. Star with them, but branch out using the internet and good old fashioned phone research. Perhaps the best Doctor is at MD Anderson, perhaps they are at BCM or one of the other hospitals.

Good luck, and do you your research!
Click to expand...

Quoted for emphasis...

DBrunk01 · May 29, 2008

Dubious said:

From my limited personal experience I would tell you to get her an appointment at MD Anderson, asap. It's a little shocking there because of all the people with cancer but the doctor's are the best, the staff exhibits a level of caring beyond what should be possible and their level of computerization makes appointments and record keeping cutting edge. I can have blood drawn at 10 and the results are on my docs computer by 11:30.

Get your appointment with Dr. Madeline Duvic if poissible. She is the head of oncology and dermatology so this should be in her field.

edit: I see you are in Las Vegas...well, it could still be worth a trip.
Click to expand...

Adding onto what I said earlier - I actually work at MD Anderson, and concur with this statement completely. The doctors are very specialized here, so they know what they're doing - and 99% of them are in the 99 percentile as far as respect in their fields.

countingcrow · May 29, 2008

Dubious said:

From my limited personal experience I would tell you to get her an appointment at MD Anderson, asap. It's a little shocking there because of all the people with cancer but the doctor's are the best, the staff exhibits a level of caring beyond what should be possible and their level of computerization makes appointments and record keeping cutting edge. I can have blood drawn at 10 and the results are on my docs computer by 11:30.

Get your appointment with Dr. Madeline Duvic if poissible. She is the head of oncology and dermatology so this should be in her field.

edit: I see you are in Las Vegas...well, it could still be worth a trip.
Click to expand...

Sorry, I haven't updated my profile. I am now back in Houston. She went back to the doctor today and they are referring her to a specialist at MD Anderson who specializes in T-Cell Lymphoma. She is still scared but she is starting to realize that it could be a lot worse.

Thanks for all the well wishes and advice, guys.

Forums

[Medical] Is this unusual?

Rashmon Member

DBrunk01 Member

countingcrow Member

Share This Page

About ClutchFans

Rockets Content

Support ClutchFans!