Parents Have Surgery Performed on Daughter to Keep Her Small Size

*shrug*
I am becoming desensatized to this stuff
I mean . .I saw a news Item about Parents trying to Manipulate thier
Kids' genes to match theirs more closely
[I think in the story Little People were ensuring that their kids
would be little people as well.]

Children are becoming the New Experimentation ground or something
they have no rights that we have to respect

Rocket River

 

wow just a sad story all around. I feel for the parents, but I can't believe that this was the best solution for everyone.It just opens up messy doors because you know there will be some idiot family out there who decides they want to see how far they can push this.

BTW I saw a really crappy movie once called "Distrubing Behavior" about parents who lobotimize their kids so that they can control their behavior. Am I the only one who sees distrubing similarities to this?

 

I'm not sure how I feel about this but a big part of me is sympathetic with the parents. I have been a counselor at a week long overnight camp for kids with special needs (all types). Caring for these children gets really difficult the larger they get - and conversely the older the care givers get.

It sounds like they are doing this for the right reasons. If they wouldn't have done this and put the child in a home no one could have criticizied them -- but they are trying to keep her at home.

 

They stunted her growth becuas ethey couldn't continue taking care of her if she continued to grow physically.

How many parents have felt that way about their kid as they reached adolescence?

Again I totally sympathize with the parents as well, but I just think this is bad bad bad all around

 

The daughter is 9 years old and has static encephalopathy. She can't walk, talk, keep her head up, roll over or sit by herself. She receives food through a tube.

The choices here were her going into a nursing home or doing this surgery and them being able to take care of her at home. Her growth was more than an inconvenience to the parents.

I've cared for kids like this -- I've seen them grow -- I've seen the parents anguish when they could no longer physically care for the child they loved.
Even the best nursing homes can only provide so much attention/care. If the parents are physically/emotionally capable of caring for a child the best place for them is at home.

I'm not sure if I think this is right or not --- but I understand the parents decision.

 

I share the same ambiguous feelings as you do, and I'm sure you can see the potential problems that this will open up in the current state of society we live in where people are microwaving their kids or throwing them against chairs because they can't cope with them crying or simly wanting their diaper changed, or throwing their kids in the dryer because one of them wet their pants. These parents might be the best intentioned in the world and love their daughter as much as anyone could love their child, but what about the next set of parents who wants to do a procedure because they can't cope with their child's handicaps? Does this extend to kids with down syndrome? How about autism? What about kids with cystic fibrosis?

This opens up too many messy possibilities.